Main duties of the job

The post holders will be expected to work together to:

  • Deliver local support to patients diagnosed with Huntingtons Disease (HD) in North Wales as a key worker.
  • Track patients along their disease pathway from diagnosis to end of life care.
  • Coordinate the local multidisciplinary care of patients with HD across North Wales in primary and secondary and Third Sector care ensuring patients can access high quality care that adheres to the best standards of care and best practice guidance.
  • Liaise with the the Huntingtons Disease tertiary care clinic for advice
  • To be a single point of contact for patients with HD, their carers and professionals as a resource for information advice and signposting.
  • Co-ordinate ENROLL-HD research project in regards to recruitment and retention. 

    • The ability to speak Welsh is desirable for this post; Welsh and/or English speakers are equally welcome to apply. 

    Working for our organisation

    If you relish a challenge, have a passion to help others or simply fancy a fresh start, then Betsi Cadwaladr University Health Board (BCUHB) North Wales, has all the right ingredients. The largest health organisation in Wales, providing a full range of primary, community, mental health, acute and elective hospital services for a population of around 700,000, across North Wales . Join our team and get the support you need, in line with our Organisational Values and Proud to Lead competence framework.

    Enjoy being part of working with engaged leadership at all levels, and be assured we are committed to promoting equality and diversity, and are proud to welcome applicants under the Disability Confident Employer scheme.

    Please check your email account regularly. Successful applicants will receive all recruitment related correspondence via the email account registered on the application form.

    Applications may be submitted in Welsh. Applications submitted in Welsh will not be treated less favourably than an application submitted in English. 

    Detailed job description and main responsibilities

    You will be able to find a full Job description and Person Specification attached within the supporting documents or please click Apply now to view in Trac. 

    Person specification

    Qualifications

    Essential criteria

  • Registration with professional body(nursing, relevant therapy body e.g. Physiotherapy , Speech and Language Therapy Occupational Therapy)
  • Relevant 1st degree or evidence / working towards, supplemented by diploma level specialist training or experience

    • Experience

    Essential criteria

  • Significant post registration experience including experience relevant to palliative care and community working
  • Broad range of community experience of speciality
  • Experience of working in a multidisciplinary team
  • Demonstrate leadership skills and experience

    • Desirable criteria

  • Experience in caring for patients with Huntingtons Disease
  • Working in the community setting
  • Teaching skills and experience

    • Knowledge

    Essential criteria

  • Current services for HD patients in North Wales
  • Advances and current issues in HD
  • The research process.

    • To work in the UK, all candidates who are not UK or Republic of Ireland (RoI) nationals require sponsorship to obtain either a Health and Care visa or Skilled Worker visa , unless you have permission to work via another route. Non UK / RoI candidates wishing to apply should self-assess the likelihood of obtaining a Certificate of Sponsorship by visiting Work in the UK . If you are eligible for the Health and Care visa, application costs are lower and you do not need to pay the annual Immigration Health Surcharge.

    Employer certification / accreditation badges

    Applicant requirements

    You must have appropriate UK professional registration.

    This post is subject to the Rehabilitation of Offenders Act 1974 (Exceptions) Order 1975 (Amendment) (England and Wales) Order 2020 and it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service.

    Welsh language skills are desirable

    You must have appropriate UK professional registration.

    This post is subject to the Rehabilitation of Offenders Act 1974 (Exceptions) Order 1975 (Amendment) (England and Wales) Order 2020 and it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service.

    Welsh language skills are desirable